Allergy Testing - Blood Results

The last time the girls had their blood tested, the allergist called and told me the results over the phone. Some of Rowan's numbers had gone up, and hearing the results was really discouraging. I'm not a cryer, but after hanging up, I felt tears welling up in my eyes. According to the numbers, they will not outgrow a few of these allergies. And why the heck did Rowan's go up?

The high numbers are burned into my brain, but I kept forgetting some of the lower numbers. We avoid them all anyway, so I guess the numbers aren't really that important. I finally asked our allergist to send us the test results, just so I would have them on hand.

These are the official results. I'm sharing them here more for my own records, not because I think anyone will be all that interested.

Here is the scale:
.35 – .70 = Low
.71 – 3.50 = Moderate
3.51 – 17.50 = High
17.51 or greater = Very High

ROWAN
Casein: >100  (Very High)
Milk: >100  (Very High)
Egg White: >100  (Very High)
Egg Yolk: 44.30  (Very High)
Peanut: 28.30  (Very High)
Turkey: 16.30  (High)
Wheat: 10.30  (High)
Chicken: 4.62  (High)
Pork: 3.15  (Moderate)

She is also allergic to Soy (last round was 4.6 - High), but I didn't see the numbers for this round.
So you can see why I was frustrated. She has a chance of outgrowing Pork. Great.

RYLIE
Peanut: >100  (Very High)
Shrimp: 3.55  (High)
Milk: 3.09  (Moderate)
Crab: 2.94  (Moderate)
Lobster: 2.85  (Moderate)
Almond: 1.53  (Moderate)
Poppy Seed .10  (Low)
Sunflower Seed: .68  (Low)
Sesame Seed: .54  (Low)
Various Tree Nuts: all around .5  (Low)

So Rylie has lower numbers overall, but unfortunately we still have to avoid ALL of the foods on their lists. Kids have had anaphylactic reactions, even with lower numbers. These tests don't necessarily gauge how strong a reaction will be. (In our case, both girls have had anaphylactic reactions, so we know there are certain foods that we have to avoid at all costs). And the higher numbers indicate that they will not outgrow those specific allergies.

Really hoping that the immunotherapy research trials at Duke will lead to something that becomes a mainstream treatment!

Rowan's updated blood test results

We had Rowan's blood re-tested about a month ago to see if anything had changed with her food allergies. We just got the results and they were very disappointing.

The range for moderate is 0.7 - 3.5. High is anything over 4.0.
Last year, she was at an 85 for eggs and milk...extremely high. Peanut was around 9.34. Wheat was 5.3, Soy was 4.6. Chicken and turkey weren't in the blood test, but the skin test showed she was allergic.

This year, her numbers actually went up - which surprised me, because she was already so high. Her current numbers are below. Anything over 4.0 is high.

Milk: above 100
Egg: above 100
Peanut: 28.3
Turkey: 16.3
Wheat: 10.3
Chicken: 4.6
Pork: 3.0

I was hoping that the turkey, chicken and wheat numbers would drop and we could try reintroducing these foods. She was already eating a little bit of wheat every day, so I need to ask the doctor about that one. For now we'll try to avoid it. Citrus still makes her wheeze, so we'll avoid that too.

The numbers of the top 3 or 4 on the list are an indication that she will not outgrow them. I feel like it would be a miracle if she could just outgrow a few of them.

We'll just keep avoiding all the things we've been avoiding, and be super careful about touching her after handling any of these foods. Rylie's last test was above 100 for peanuts, and 3.0 for milk and shellfish, so nothing new there. We never go anywhere without our epi-pens!

Rylie - allergy testing update

Rylie hasn't been tested for allergies since she was 2, so today she went back to Dr. Ghory for skin-prick testing, and to review the results of her RAST (blood) test. Jamie took her and said she was not happy about the skin prick testing on her back, and she was really squirming. They were there for about 2 hours. I was glad to get a break and not have to be the one to take her - thanks Jamie.

The results are the same. Still severely allergic to peanuts, and still moderately allergic to milk and tree nuts. The peanut levels indicate that she will not outgrow this allergy. She will more than likely outgrow the milk allergy, but not anytime soon. We also found out that she is moderately allergic to shellfish.

I was hoping her milk numbers would be lower, but at least it's not life-threatening. Looks like we'll just keep doing what we're doing.